Strategy 4: Patient Centered Care

Organize care around the diverse needs of patients and families.

To read more details about this strategy, download the full Transplant Resource Guide

This section has been reviewed and updated as of October 2018. 

  • Patient Education

    Informed Consent Samples

    • CMS Required Elements of Consent for Transplant PatientsDownload – The George Washington University Hospital
    • Consent for Accepting a Blood Type A2 or A2B KidneyDownload – The George Washington University Hospital

    General Transplant Patient Education

    • Checklist for Referring PhysiciansDownload – Cincinnati Children’s Hospital Medical Center
    • Food Safety for Transplant RecipientsLink – or email mphotline.fsis@usda.gov or fsis.outreach@usda.gov to request copies.
      • For additional information visit the FDA Transplant Recipient site – Link
    • Partnering With Your Transplant Team: The Patient’s Guide to TransplantationLink
    • United Network for Organ Sharing (UNOS) – Link
    • Understanding the United Network for Organ Sharing (UNOS)Link
    • UNOS Patient WebsiteLink
    • Transplant Living (UNOS)Link
    • Transplant Policy Brochures (UNOS)Link
    • Explore Transplant & Living Donation  – Link
    • Living Donor ToolkitLink – AST

    Heart Transplant Patient Education

    • About Heart Transplant link – Emory University Hospital
    • Heart Transplantlink – American Heart Association
    • Heart Transplantlink – National Heart, Lung, Blood Institute

    Kidney Transplant Patient Education

    • American Association of Kidney Patients (AAKP)Link
    • A Guide to Pediatric Kidney TransplantLink – University Transplant Center for Children
    • About Kidney Transplant – Link – Emory University Hospital
    • After Your Transplant (Kidney) – Link – Duke Transplant Center
    • Before Your Transplant (Kidney)Link – Duke Transplant Center
    • Dialysis/Transplant Comparison ChartLink
    • Living Kidney DonationLink – University Transplant Center
    • What is a Kidney Transplant and How Does it Work?Link
    • About the Kidney Transplant Learning CenterLink – UNOS
    • Kidney Transplant Spanish WebsiteLink – Informate

    Kidney & Pancreas Transplant Patient Education

    • Kidney-Pancreas Transplantlink – Barnes Jewish Hospital
    • Kidney-Pancreas Transplantationlink – National Kidney Foundation

    Liver Transplant Patient Education

    • About Liver Transplantation – link – Emory Transplant Center
    • After Your Transplant (Liver)link – Duke Transplant Center
    • Liver Transplant – link – National Liver Foundation
    • Liver Transplant Patient Education Classlink – University of Michigan Transplant Center

    Lung Transplant Patient Education

    • A Patient’s Guide to Lung Transplantlink – University Transplant Center
    • After Lung Transplantationlink – International Transplant Nurses Society
    • After Your Transplant (Lung)link – Duke Transplant Center
    • Before Your Transplant – Part I (Lung)link – Duke Transplant Center
    • Beginning the Conversation with Patients and Families about Lung Transplantdownload – Cincinnati Children’s Hospital Medical Center
    • Beginning the Lung Transplant Conversation with Cystic Fibrosis Patients and their Familiesdownload – Cincinnati Children’s Hospital Medical Center
    • Lung Transplantlink – Barnes Jewish Hospital
    • Lung Transplant Evaluation Education Sessionsdownload – Cincinnati Children’s Hospital Medical Center
    • Lung Transplant Patient Education Booklink – University of Virginia Health System
    • Lung Transplant TodayLink
  • Pediatric Education

    Transitioning Pediatrics to AdultsLink – UNC STARx Transition Program

  • Relevant Literature
    • Applying best practices to designing patient education for patients with end-stage renal disease pursuing kidney transplantarticle – Skelton SL, et al. (2015), Progress in Transplant, 25(1): 77-84. doi: 10.7182/pit2015415.
    • Effective teaching strategies and methods of delivery for patient education: A systematic review and practice guideline recommendationsarticle – Friedman AJ, et al. (2011), Journal of Cancer Education, 26(1): 12-21. doi: 10.1007/s13187-010-0183-x.
    • Health literacy in heart transplantation: Prevalence, correlates and associations with health behaviors – Findings from the international BRIGHT study – article – Cajita MI, et al. (2017), The Journal of Heart and Lung Transplantation, 36(3): 272-279. doi: 10.1016/j.healun.2016.08.024. Epub 2016 Sep 13.
    • Looking on the BRIGHT side of health literacy in patients with cardiac transplantation: Where are we and where do we need to go?article – Mclivennan CK. (2017), The Journal of Heart and Lung Transplantation, 36(3): 253-255. doi: 10.1016/j.healun.2016.10.002. Epub 2016 Oct 13.
    • Optimizing informed consent in living liver donors: Evaluation of a comprehension assessment toolarticle – Gordon EJ, et al. (2015), Liver Transplantation, 21(10): 1270-1279. doi: 10.1002/lt.24175.
The Alliance welcomes submissions to the Transplant Resource Guide & Tools.
Contributions can be emailed to info@odt-alliance.org with a statement providing approval for posting to this site.