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Education Corner: Palliative Providers – Working Together to Maximize Family Care

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What is Palliative Care?
A palliative care provider is a healthcare professional that specializes in caring for people who are living with serious illness. Their primary goals of care are to relieve symptoms of illness and/or stress and to ultimately improve the quality of life for the patient and their family, as they are often seen as a collective unit.

Common “Triggers” for Palliative Care Consults
Palliative Care providers are often paged for consultations when a patient’s prognosis for survival and recovery is grave, they require assistance to cope with symptom distress, intensive healthcare utilization is necessary, or if there is patient’s family in distress.

Meeting Palliative Care and OPO shared values and mitigating their shared concerns lead to higher authorization rates.

Palliative Care and OPO: Shared Values:

  • Patient/Family-centered decision-making
  • Communication involving healthcare teams as well as patients/families
  • Emotional and practical support
  • Symptom management and comfort care
  • Spiritual support
  • Organization and emotional support for ICU clinicians

Palliative Care and OPO: Shared Concerns:

  • Providing adequate information
  • Assurance of high quality of care of the donor
  • Understanding of diagnosis, prognosis, and treatment options
  • Separation of death notification from request for donation
  • Private setting for family conversations
  • Proper utilization of trained requestors

Consideration of organ and tissue donation can be woven seamlessly into routine End of Life (EOL) communications. The collaboration between Palliative Care and Organ Procurement Organizations (OPOs) along with the opportunity for organ donation should be recognized as a “best practice” for optimizing care at the end-of-life phase.

The 5 Goals of Family Communication

  1. Establishing trust
  2. Providing emotional support
  3. Ensuring family understanding (of diagnosis, prognosis, and treatment options)
  4. Clinician/Requestor understanding of patient as an individual
  5. Deliberation of difficulties the family experienced

Reframing Hope – Goals of Care: REMAP

  • Reframe
  • Expect Emotion and Empathize
  • Map the Future
  • Align with the Patient’s Values
  • Plan Medical Treatments that Match Patient Values

References:

The content of this issue is based on a webinar presentation by Paul L. DeSandre, DO, FACEP, FAAHPM (Chief of Palliative and Supportive Care, Grady Health Systems, Atlanta, Georgia) and Leslie Hunter-Johnson, DNP, GPCNP, BC, APRN (Director of Hospice and Palliative Medicine, Sunrise Hospital and Medical Center, Las Vegas, Nevada). A special thanks to Leslie and Dr. DeSandre for their contributions to this in-service.

  • American Association of Colleges of Nursing. (2018). End-of-life Nursing Education Consortium (ELNEC). http://www.aacnnursing.org/ELNEC
  • Center to Advance Palliative Care. (2017). About Palliative Care. https://www.capc.org/about/capc/
  • Nelson J, et al. Choosing a using screening criteria for palliative care consultation in the ICU: a report from the improving palliative care in the ICU (IPAL-ICU) Advisory Board.2013.41(10):2318-2327
  • Northwestern University. (2017). Education in Palliative and End-of-life Care (EPEC). http://bioethics.northwestern.edu/programs/epec/
  • Seaman JB, et al. An integrated framework for effective and efficient communication with families in the adult intensive care unit. Annals of the American Thoracic Society.  March 10, 2017
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About the Author:

Corey brings more than ten years of experience in corporate and non-profit fields, having worked in Communications for The Walt Disney Company and most recently, Public Relations for OurLegacy (formerly TransLife), the OPO serving Central Florida. He has also been an active board member of Donate Life Florida, serving as state team leader for the Driver License Outreach taskforce. Corey holds a Bachelor of Arts in Communication and Information Sciences from The University of Alabama. In his spare time, he is an avid music and theater enthusiast, enjoys traveling, Crimson Tide Football and serving on the board for several local charities in the Orlando area.
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