Alliance in Action Newsletter

Alliance in Action is The Alliance bi-monthly newsletter for donation and transplantation professionals to learn how to be in action to advance donation and transplantation practices.

  • May 2016 Newsletter

    A bi-monthly newsletter for donation and transplantation professionals to learn
    how to be in action to advance
    donation and transplantation practices.

    In this Issue:

    Featured Article –
    National Kidney Utilization Project
    The Alliance in Action
    Over the past 8 years 20,000 deceased donor kidneys have been discarded in the U.S. The Kidney Utilization Project is focused on reducing the current 18.7% kidney discard rate and seeks ways to ensure viable kidneys that are at risk for not being transplanted are utilized to the greatest extent possible. (Click here for overview PPT.)

    The project is being run by a workgroup out of The Alliance Leadership & Innovation Council and is led by Dr. Robert Harland (Professor of Surgery & Vice Chair of Academic Affairs, University of Arizona) and Kevin O’Connor (CEO, LifeCenter Northwest). We have contracted with Dominic Adorno (Manager, Business Intelligence, Donor Network West) to be the data coordinator for this project.

    Other workgroup members are: Lynn Onken (Nebraska Organ Recovery), Sharon Stover (LifeLogics), Chris Jaynes (Perfusix), John Magee, MD (University of Michigan), Wade Liu (Transplant Connect)

    The design and initial analysis phase of the project is coming to an end. During this phase, SRTR OPO observed to expected kidney yield outcomes from 2012-2015 were analyzed. Four OPOs were identified as having consistently high O:E ratios for kidney transplanted per donor on 9 consecutive semiannual review cycles. A questionnaire was administered and in person interviews were conducted with New England Organ Bank, Washington Regional Transplant Community, Intermountain Donor Services, and Donor Network West. We want to thank these OPOs for facilitating our visits and for sharing their leadership philosophies, cultures, practices, processes and lessons learned.

    ***Call for OPO Participation***

    Next phase, is the implementation and monitoring phase, planned to run from August through July 2017. During this phase, OPOs will be invited to participate in a pilot of implementing strategies and practices learned during the design and analysis phase. Kidney utilization rates of the participating OPOs will be tracked to assess change and the overall impact. After the pilot has been completed, the entire project will be evaluated and a report will be shared with the OPO and transplant community of practice. For OPOs interested in participating or learning more about the pilot project, please email Hedi Aguiar, haguiar@odt-alliance.org.

    Transplant Leadership Council Activities 
    Transplant Onboarding and Mentorship Program

    A workgroup is currently being formed to develop an onboarding and mentorship program for new hires into the transplant field. The training offered through this program will be designed to support a transplant program’s own new employee orientation process. The onboarding program is scheduled to launch early Spring, 2017 and the mentorship program is planned to be launched this Fall. 

    Transplant Resource Guide
    The Transplant Resource Guide is being updated. The Guide is a compilation of strategies, change concepts and action items that incorporate best practices for developing and sustaining high quality, patient-centered excellence by enhancing the infrastructure and operations of transplant programs. It also includes a robust selection of additional resources, templates and worksheets. Access these tools here: https://organdonationalliance.org/transplant-quality-resource-guide-tools/.

    Disrupting the Status Quo – A National Critical Issues Forum 
    Registration is open for the Disrupting the Status Quo: A National Critical Issues Forum! 
    • October 21-22, 2016, Green Valley Ranch Resort Spa & Casino, Henderson, NV
    • Attendees: Senior level hospital, transplant center and OPO leaders
    • Learning Objectives:
      • To identify effective and scalable practices to increase organ utilization
      • To identify opportunities to disrupt current practice patterns and evaluate how existing policies may impede organ utilization
      • To implement strategies to enhance techniques and provide economic incentives to increase organ utilization
      • To example the science of decision-making as it applies to current organ utilization practices strategies
    • Find more information here
    Teaser of Things to Come
    • “The Alliance 101” webinars
    • Brain death declaration (for physicians) webinar 
      • Save-the-date – August 17, 2-3:30pm ET
    • Hospital C-suite webinars
    • National virtual journal club
    Opportunities to Get Involved

    • Webinar faculty members: We are currently looking for webinar faculty members to help with the planning and development of our 2017 webinars. If you are interested in serving as a webinar faculty member, please read the faculty commitments and submit your bio and contact information to Hedi Aguiar, haguiar@odt-alliance.org by June 23.
    • C-Suite webinars: We are looking for some volunteers to help us create and coordinate a couple of webinars for C-suite-level hospital leaders. If you work closely with hospital C-suite level leaders and are interested in helping us, please email your interest and brief bio to Hedi Aguiar, haguiar@odt-alliance.org, by June 30.
    Featured “Your Story” Community News
    Transplant: Hope, Optimism, and Selflessness
    Chad Southward – Policy Manager & Policy Oversight Committee (POC) Liaison – United Network for Organ Sharing (UNOS)

                                

    I was born with Cystic Fibrosis. Being a progressive disease, I knew that I would eventually need a double lung transplant. I never imagined I would need 2 transplants. I received my first double lung transplant in 2004 and my second in 2010, after a bout with influenza, RSV, and pneumonia.

    After my transplants, I was told I could no longer teach middle school due to the sickness of the children and my immunity. I joined the UNOS team in 2011 as an IT trainer. I quickly fell in love with the behind the scenes mission of UNOS for organ transplant. I have since designed curriculums for transplant hospitals and now serve as policy manager and committee liaison to the Policy Oversight Committee.

    Transplant has defined me – not in terms of health or medications – but in terms of hope, optimism, and selflessness.

    “Your Stories” is a page on our website sharing stories of healthcare professionals, who work within the donation and transplantation process, and who have been personally affected by donation and/or transplantation. To share your story, visit our website.

    Call for Proposals for Organ Donation Research 
    The Organ Donation Research Consortium (ODRC) and Association of Organ Procurement Organizations (AOPO) will be offering funding for research in the advancement of the science of organ donation. 
    • Up to $40,000 in funding will be available for basic, translational or clinical research
    • Applications must be received by 5pm PST on July 1, 2016
    • Find additional information here

    Living Donor Protection Act
    The Alliance has supported and co-sponsored the Living Donor Protection Act in order to protect living donors and promote organ donation with impact at local and national levels. It strives to allow more people to become living donors without fear of job loss or discrimination. This legislation was recently introduced by Senators Mark Kirk (R-IL) and Kirsten Gillibrand (D-NY) as well as Congressman Jerrold Nadler (D-NY) and Michael Burgess, MD (R-TX). Find The Alliance’s letter of support here.

    2017 Donate Life “Teammates in Life” Float
    The design for the Donate Life float for the 2017 Rose Parade has been revealed! It will depict a Polynesian catamaran propelled by a team of organ, eye and tissue recipients. These recipients will be working in synergy fueled by strength from their donors.

    The parade theme will be “Echoes of Success” and, fittingly, the Donate Life “Teammates in Life” float will exemplify the importance of a team for success in donation: the heroic donors and donor families, recipients and their loved ones, and the healthcare and other professionals who support them all. Read more about this beautiful endeavor and learn how to get involved: http://www.donatelifefloat.org/wp/in-the-press/ http://www.digitaljournal.com/pr/2925530

    DTCP Collective Goal
    To read more details about the DTCP collective goal and view the most current data comparing years 2015 to 2014 and to find suggested strategies for transplant programs, OPOs, and hospitals where donation happens, visit The Alliance website community section

    Transplant Resource Guide

    Alliance Academy

    Webinar Series

    What’s Trending

    About The Alliance:We are dedicated to providing engaged learning, innovation and collaborative leadership for future advancements in organ donation and transplantation. To become involved and explore the resources available to you, visit our website and connect with us on social media.*The Alliance communication distribution list is made up of those who have participated in Alliance activities.
    The Alliance Team:

    LeAnn Swanson – Executive Director –
    lswanson@odtalliance.org

    Hedi Aguiar – Director, Programs & Communications –
    haguiar@odt-alliance.org

    Kathy Thomas – Administrative Assistant –
    kthomas@odt-alliance.org

     

                                         

     

     

  • March 2016 Newsletter

    A bi-monthly newsletter for donation and transplantation professionals to learn how to be in action to advance donation and transplantation practices.

    In this Issue:

    Featured Article – To Pump or Not to Pump The Alliance in Action
    A summary of The Alliance’s first innovation webinar for 2016, presentation by Dr. Glen A. Franklin

    Currently in the U.S., mainly kidneys recovered from Extended Criteria Donors (ECD) and Donation after Circulatory Death (DCD) donors are being pumped. A randomized controlled trial in Europe demonstrated significant reduction in delayed graft function (DGF) with the use of machine perfusion (Moers et al, 2009). In this trial, Standard Criteria Donors (SCD), ECD, and DCD donors were included (n=336) and it was identified that DGF decreased from 26.5% to 20.8%.The U.S. retrospective review study conducted by Dr. Franklin and Dr. Cannon hypothesized that machine perfusion in the U.S. will also decrease episodes of DGF (2013). This study reviewed all adult isolated kidney transplants from 1/1/2005 to 3/31/2011 (n=52,052), including all SCD, ECD, and DCD donors, comparing machine perfused (38%) to cold stored (62%) kidney outcomes. Findings demonstrated, after propensity matching, that DGF occurred in 21% of machine perfused kidneys vs 29% of cold stored kidneys (p < 0.001), which translates into every 12.5 machine perfused kidneys one episode of DGF will be prevented. Even for SCD donors, DGF rates were 16.8% for machine perfused kidneys vs 25.3% for cold stored kidneys. This demonstrated an 8.5% absolute reduction in DGF (2015). While further work is still needed to determine the ideal population and cost neutrality for machine perfusion benefit, the clinical conclusion recommends the expansion of machine perfusion beyond its current level of utilization would likely be beneficial in reducing DGF.(To watch the full webinar recording, register here or through The Alliance Academy: http://organdonationalliance.org/alliance-academy/.)

    Moers C, Smits JM, Maathuis MH, et al. Machine perfusion or cold storage in deceased-donor kidney transplantation. N Engl J Med, 2009; 360(1):7-19. doi:10.1056/NEJMoa0802289.

    Cannon RM, Brock GN, Garrison RN, et al. To pump or not to pump: a comparison of machine perfusion vs cold storage for deceased donor kidney transplantation. J Am Coll Surg, 2013; 216(4):625-634. doi: 10.1016/j.jamcollsurg.2012.12.025.

    Cannon RM, Brock GN, Garrison RN, et al. Machine perfusion: not just for marginal kidney donors. Am Surg, 2015; 81(6):550-556.

    Efforts are underway to examine further opportunities for increasing kidney utilization in the U.S. One of those efforts led by The Alliance is introduced in The Alliance business section of this newsletter.

    “Thank you” to our professional partners for choosing to financially support the work of The Alliance!

    Kidney Utilization Workgroup – A Leadership and Innovation Council workgroup

    Nationally, there are more than 101,000 people waiting for kidney transplants. Over the past 8 years, due in part to inefficiencies in donation and transplantation processes, 20,000 kidneys have been discarded. Clearly, innovative interventions are necessary to reduce the number of gifted kidneys lost.

    The Leadership and Innovation Council is one of three Leadership Councils of The Alliance and is comprised of national leaders from Organ Procurement Organizations (OPOs), donor hospitals, transplant centers and businesses. The Council focuses on utilizing available data and knowledge with the intent of driving performance excellence and innovative practices to improve donation outcomes.

    The intervention proposed by the Kidney Utilization workgroup is to focus on the 18.7% discard rate to save those kidneys for transplant that should have been transplanted but were not due to inefficient processes.

    Objectives for the initiative are to:

    1. Identify nationally collected data points to determine an appropriate measure of kidney utilization and kidney wastage.
    2. Identify replicable strategies to minimize kidney wastage from high performing Organ Procurement Organizations (OPOs) and transplant programs.
    3. Create a national and collaborative initiative to adopt the recommended strategies for a testing phase.
    4. Measure the impact on the number of kidneys transplanted and wasted.

    Stay tuned for more details about this exciting project and how your organization can become involved in the national initiative.

    Grant News! – The Alliance has been awarded a grant from ASAE’s Innovation Grants Program to pursue this exciting work. 

    Disrupting the Status Quo – A National Critical Issues Forum 
    To all the hospital systems, OPO, and transplant leaders, we hope you plan to attend the Critical Issues Forum to be part of this important discussion. For more information and a draft agenda, click here. Registration will open in April.

    Featured “Your Story” Community News
    Two Kidneys from One OPO

    While it is not uncommon for an Organ Procurement Organization to provide kidneys for transplant, it is unusual how two particular kidneys became available from within Carolina Donor Services (CDS). Julie Landon (left in image), an Organ Donation Coordinator, wanted to help someone by becoming a living donor. Julie, who spent a lot of time on Intensive Care Units, became friends with Sandi, a nurse that worked in a trauma ICU. Sandi shared that her husband, Terry, would eventually need a kidney transplant. Julie discovered that she had the same blood type as Terry and took that as a sign that this was her chance to be a living donor. In June 2006, Julie underwent a donor nephrectomy and Terry received his new kidney.When Ginger DeLario (right in image), Clinical Educator Coordinator for CDS, was asked by her next door neighbor if she would talk to his friend, who was on dialysis and in need of a kidney transplant, she didn’t really think much about it. During her conversation with Manny, she found out that they shared the same rare blood type and it started weighing heavily on her heart. She talked to her co-worker, Julie, about her experience of being a living donor. She matched Manny as if she were his daughter. In June 2011 in New York City, after she had weighed her decision for months, Ginger donated a kidney to Manny. It is heart breaking to know that before the clock strikes midnight tonight, 20 people will have died because they did not get the organ they needed to live.

    Julie and Ginger donated to men they barely knew, with the support of their families and CDS. Both agree that donation was the right decision for them. CDS has a Living Donor Leave policy that grants up to 30 days paid leave to support employees who become living donors. Many OPO professionals work every day to make donation happen; yet never get to see the outcomes for the recipients. Seeing Terry and Manny living and enjoying life is a gift to both of them. What more could two OPO professionals ask for?

    “Your Stories” is a page on our website sharing stories of healthcare professionals, who work within the donation and transplantation process, and who have been personally affected by donation and/or transplantation. To share your story, visit our website.

    DTCP Collective Goal 

    The Donation and Transplantation Community of Practice strategic planning committee continues to encourage the community to work towards the collective goal of saving and healing lives by increasing the number of organs transplanted by 5,000 over the next five years. To read more details about the DTCP collective goal and view the most current data comparing years 2015 to 2014 and to find suggested strategies for transplant programs, OPOs, and hospitals where donation happens, visit The Alliance website community section

    National Donate Life Month

    “Through life and its struggles, the sunflower reminds us to lean on each other and embrace the life-giving aspects of our lives. It reminds us to live with joy, to focus on the light even during difficult times, and to give freely to save the lives of others when we are gone.” Please learn more about this year’s sunflower symbol and consider ways to spread donation awareness during April. 

    Workplace Partnership for Life (WPFL)

    Q:  What is the WPFL for Life?
    A:  The WPFL is a national initiative that was launched in 2001 to encourage the American public to register as donors.  It includes more than 11,000 Partners;  companies, associations, unions, and academic-, volunteer-, philanthropic-, and community-focused organizations of all kinds.  These partners unite with the U.S. Department of Health and Human Services to help foster a spirit of donation throughout the country.

    Q:  What Do Workplace Partners Do?
    A:  Partners commit to educating their employees, members, or customers on the importance of donation and providing opportunities to register as donors.

    Learn more about this simply powerful initiative by visiting the Workplace Partnership for Life website.

    Transplant Resource Guide

    Alliance Academy

    Webinar Series

    What’s Trending

    About The Alliance:We are dedicated to providing engaged learning, innovation and collaborative leadership for future advancements in organ donation and transplantation. To become involved and explore the resources available to you, visit our website and connect with us on social media.*The Alliance communication distribution list is made up of those who have participated in Alliance activities.
    The Alliance Team:

    LeAnn Swanson – Executive Director –
    lswanson@odtalliance.org

    Hedi Aguiar – Director, Programs & Communications –
    haguiar@odt-alliance.org

    Kathy Thomas – Administrative Assistant –
    kthomas@odt-alliance.org